Migraine Journey Part 2 Its Been A Long February

Today I am Feeling a lot Better

It has taken me several days and a lot of trial and error to get to this point. Rewind to Tuesday’s last blog post, I went in for my brain scan with a migraine hiding behind my sunglasses.

The scan went well, I managed to hold still the entire time, they got my message about being unable to lay on my back without support under my knees and had everything ready when I got there.  The entire procedure only took about 15 minutes once they got my head and shoulders stabilized in whatever contraption they use to make sure you do not move around while they do the imaging.

The process was made more bearable by some head phones playing  old school 80s radio, I would have preferred  relaxing meditative instrumentals or ocean waves but some Phil Collins was not a bad way to set my mind at ease.

When the procedure was done I decided to head to the pharmacy to see if they had ever heard back on the dosage for the Maxalt for the migraine pain, they called the doctor again.

So I waited, in the corner hidden behind my sunglasses until someone at the pharmacy started suggesting to me that perhaps I should try contacting the doctor myself, he continued talking to me while my head was pounding and all I wanted to do was just get some Extra Strength Excedrin, some chocolate, and go to nice dark quiet place, so I did just that and left.

Later that afternoon the pharmacy texted that my med was ready, head was still pounding so I sent my daughter to pick it up for me, an hour after taking that I was still in pain, that evening I took two more Extra Strength Excedrin. The following morning I took another Maxalt and went to work suffering in pain.

At work I asked the manager on duty to put me down for a wellness massage as soon as possible, she not only did that she helped clear my schedule and get me off the clock so that I could go rest because by that time I was experiencing vertigo and nausea as well as the excruciating head pain.

The Massage focus was on head, neck, shoulders and back, a lot of neck and scalp specific work and believe me the muscles of the scalp were painful to the touch, especially the temporalis muscles and I was definitely feeling those areas of tension throughout the evening after the massage.

The pain continued though and by the next day I had given up on the meds aside from the daily preventative Topamax and changed course and started taking large amounts of Turmeric, Vitamin D3, B6, B12, Magnesium, and lots of water along with hemp CBD oil by the dropper as needed all day long.

By the following day I was able to use far less of it, I can still feel that I am not fully out of the woods yet, the pain is sill subtly throbbing in there, but the CBD seems to be making life far more bearable right now, so much so that I was able to pick up another shift at work today to make up for clearing my shift the other day.

Anyhow, This was just a quick update while the events of this week are still all to fresh in my mind… and a little timeline of events in case I forget them later:

Feb 7 met the neuro had visual migraine that evening

Feb 9 had migraine (have had pressure by right orbital bone since last visual migraine)

Feb 18 had irritability, sound and light sensitivity (I knew it was coming)

Feb19 woke with the migraine was MRI day, finally got the Maxalt (did Excedrin twice that day as well)

Feb 20 ouch still going Tried Maxalt again and Excedrin, got massage, most painful night ever! sound sensitive, light sensitive.

Feb 21 gave up on the Maxalt and Excedrin and used CBD and supplements, started feeling a little better, still dizzy.

Feb 22 still doing CBD and supplements, still mild headache, a bit off balance, some visual difficulty, light sensitive.

Feb 23 good morning Firday… how do I feel right now? my eye has been doing that twitching thing for so long that I totally forgot to mention it, its almost become such a daily thing that its not even a thing, so there is that, my eyelid has been twitching for the better part of this month, thank goodness no one seems to have noticed little lefty winky… I feel drained, there is still a feeling as if someone has a finger over the orbital bone by my right eye and there is a slight pain throbbing on the left side of my head. I also feel like there is a veil over my head, cant describe it better than that really.

I feel much better than I have all week and that is saying a lot, but I am not leaving for work without my CBD oil and I have ordered more, I am now realizing why I waited so long to seek treatment for my migraines, because I have done this in the past with similar results, what I was seeking this time is treatment options, not simply more pills. I will continue to update you if I do find out anything that works, so far CBD helps.

(Editing to add the events of the weekend)

Feb 24 Sunday evening at work the head pain continued mildly, growing in intensity with any activity, I was able to keep it under control with some deep breathing and closing my eyes whenever possible but I was still having visual disturbances in the form of tracers and seeing movement in the corners of my eyes.

It is now Monday Feb 25th and I have a new Dr P product being delivered today that I am excited to give a try later, a combination of CBD and Hops for anti-inflammatory properties, believe me at this point I am willing to give anything a try.

As for how I am feeling today, I feel like crap, this has been going on too long, my stomach aches, my head aches, it hurts to look at my cell phone, my computer, the outside world where the beautiful sun is shining, any white paper, any website with a dark background and yellow font, and website with a white background and black font, and that’s pretty much every website lol! Sound hurts, especially high pitched sounds like flutes or children’s squeals.

My vision is not terribly out of focus today, at least for the moment, it honesty changes from moment to moment. There is a constant pressure in my head, it gets more bearable if I sit totally still and do nothing at all, meditation or sleeping is preferable to anything else at this point. Bending down to pick something up makes it worse, movement, exercise, any exertion of energy seems to aggravate the headache, so its just best to be still and calm.

People have been asking me about the results of my brain scan, I do not have any answers because my next neuro appointment is not until the end of next month, its very difficult to get in to see the neurologist, which is why it is very difficult for migraine sufferers to find someone who specializes in this condition, there are very few and they are fully booked out for several weeks in advance. I will keep you posted as I find anything out!

In case you are wondering, the CBD I am currently using is Dr P’s Dark Chocolate Mint CBD Oil

Dr. P’s Dark Chocolate Mint CBD Oil

I trust both Barefut’s products and Dr P’s products so it was an easy choice for me, full spectrum, co2 extracted, no solvent, pure CBD.

Yours in Health and Wellness,

Kristeen Anne Smart (formerly Kristeen Anne Kish)

CAMTC Certified Massage Therapist

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Migraine Journey Part 1

One Week In Treatment

Lets start with the fact that I usually avoid doctors like the plague, yes I do, they terrify me more than going to the dentist and that’s saying a lot, but the migraines have increased in frequency.

As you may know I treat people with migraines and headaches in my massage practices all the time, there are a few tricks I have learned a long the way, but it is very difficult to practice on myself because I cant lay still on the table and work on myself, not for lack of trying.

So I made an appointment to see a Neurologist because if I am going to see a doctor I would prefer it be the correct doctor for the problem at hand.

The First Visit

Filled out the paperwork, met the tall elderly gentleman who is my new doctor, I thought to myself “good, he is older” I prefer an older doctor as they have been around and have seen many conditions and know that not everyone will respond the same to treatments.

He did some basic nerve tests, poked me with a pin, my nerves are all working well, which is a very good thing given my history with my back surgery over 13 years ago, and then he suggests a brain scan just to rule out any possible damage or other conditions and wrote me a script for medications.

Two prescriptions, one for a preventative, a generic form of Topomax and Maxalt, trouble was he didn’t put down a dosage on the prescription for the Maxalt so the pharmacy was unable to fill the Maxalt prescription so I was only able to fill the preventative.

That evening I went into a full blown visual migraine, I call it a visual migraine but they call it a “migraine with aura.” I find it funny they call that thing an “aura” as to me the term aura sounds so peaceful, what I see is anything but peaceful, it is sharp and jagged, a visual and sensory assault that wipes me out.

They put in a call to his office for clarification on the other prescription but to this day no return call has been made about the other medication. I have been taking the preventative for just over one week, as I am writing this today I have had one migraine with aura the evening I filled the prescription, one regular migraine two days following, and one at this moment.

I will bet you are wondering how it is that I am typing this right now with a migraine, well, because I can still see, and because I took some CBD oil which seems to be taking the edge off for the moment and I want to take a moment to share this with you because today is important.

Today I Go For A Brain Scan

This afternoon I go for a brain scan in Huntington Beach, I am actually glad that I am experiencing the migraine today because I would prefer that my brain be doing whatever it is that it does when they do the scan so that whatever is happening will be evident, if it be some sort of swelling or pressure or whatever it may be.

This is why I am actually considering todays migraine to be a bit timely. Maybe we can get some answers? Maybe this isn’t just hormones, or environmental triggers, or some hidden allergic reaction to something I ate or was exposed to, maybe it has nothing to do with the lighting on the computer monitor, or the sunlight, or driving without sunglasses.

I will keep you posted if I learn anything new on this journey or anything new about migraine treatments, what works, what doesn’t, what helps me, what doesn’t help me… and by the way, so far at 100 milligrams of generic Topamax at just over one week I am still having migraines.

Yours in Health and Wellness,

Kristeen Smart (Formerly Kish)

CAMTC Certified Massage Therapist

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